HURRICANE, W.Va. (WSAZ) -- For one mother expecting her second child, her developing baby's heart has lead to a major campaign.

“I went in thinking pink or blue and came out thinking life or death,” Kathy Baker said.

Kathy and her husband found out their developing baby boy had a severe congenital heart defect called Hypoplastic Left Heart Syndrome, or HLHS, at their 20-week ultrasound appointment.

“The left half of his heart is not working," Kathy said. "After we found out, they said we could terminate the pregnancy or have him and just keep him comfortable until he died."

But, Kathy chose a third option — fighting for the little boy she had now named Jacob. That option included a series of surgeries starting when Jacob is two days old.

“Back in the 80s, his condition was 100% fatal," Kathy said. "Now, there’s hope with these surgeries."

1 in 100 babies are born with congenital heart defects and the resources are slim.

“More babies have congenital heart defects than have all pediatric cancers combined, yet pediatric cancers get five times the funding,” Kathy said.

Kathy started her own Web page to generate more awareness and hopefully funding. She even took her fight all the way to the West Virginia Capitol, where she petitioned Governor Joe Manchin to join dozens of other states and in proclaiming this week Congenital Heart Defect Awareness Week.

Kathy, her husband and their three-year-old son, Aiden, are anxiously awaiting the addition to their family with great anticipation.

“I want to see him play with Aiden and them be happy together," she said. "Then, I’ll know I’ve done everything I could have done to make sure he has a good life."

Kathy will deliver Jacob through a planned cesarean section at a Philadelphia hospital that pioneered a surgery for babies with this defect. They have a 93% success rate.

If you'd like to follow Kathy's journey and learn more about congenital heart defects or how you can get involved, click over to our Featured Links. We've posted a link to her blog.